Research

Oncodéfi conducts research in all areas concerning intellectual disability and cancer (epidemiology, specificity of cancers, care, psychological care, biology, etc.), particularly in areas where information is lacking to improve care.

Researches

Listing Theme descriptive Date Status
CHAID : (Cancer, Hérault, Adults, Intellectual, Disability) Interventional study (retrospective/prospective) Interventional study on the distribution according to organs and stage at diagnosis of cancers in adults with intellectual disabilities in the Hérault department 2019 achevéPlan de travail 1
GYNDI : (GYNécologie Déficience Intellectuelle) Descriptive study (epidemiological) Study on cancers in women with intellectual disabilities 2017 achevéPlan de travail 1
INDEP :(INSEE DEPistage) Descriptive study (retrospective) National study on the frequency of cancers and their screening in institutions housing people with intellectual disabilities: breasts, uterus, ovaries, etc, 2018 achevéPlan de travail 1
OSO :(Obstacles aux Soins) Observational study Study on barriers to cancer care for people with intellectual disabilities 2017 achevéPlan de travail 1
ARII Dispositif Action on the difficulties encountered when accompanying a resident with cancer in an institution in the Hérault department. 2017 achevéPlan de travail 1
ADICAN :(Adults, Intellectual, Disability, Cancer) Epidemiological study (retrospective) Study on cancers in people with intellectual disabilities in old age 2018 achevéPlan de travail 1
COLODI :(Colon Déficience Intellectuelle) Observational epidemiological study Study on the characteristics of colon and rectal cancers in people with intellectual disabilities 2018 achevéPlan de travail 1
ACERCA : (Action Connaissance Et Ressenti des Aidants sur le Cancer) Observational epidemiological study Study on carers' knowledge of cancer 2021 en coursPlan de travail 1

Thanks to its numerous collaborations and partnerships, the work carried out by Oncodefi is of national and international dimensions. A strength that allows research to progress.

NATIONAL collaborations

INTERNATIONAL collaborations

Partnerships

Director

Dr Daniel satgé

Initiator of the project
Anatomical pathologist, director of the association Oncodéfi, Monptellier.

Clinical Research Associate

Dr Amaëlle Otandault

Clinical Studies Technician

Louisa Allouche

Help the association Oncodéfi

All donations are important, big or small, and will improve the treatment of cancer in people with intellectual disabilities.

Journées nationales Oncodéfi

21-22 Octobre 2021 à Montpellier

Organisées par l’association Oncodéfi, en lien avec le Centre de Lutte contre le Cancer ICM Val d’Aurelle de Montpellier. Elles font suite au grand intérêt porté aux cancers chez les personnes déficientes intellectuelles lors du dernier symposium international en 2018.